Anyone else with MTHFR - Trying to Conceive

SezzySue · 10-06-2009, 03:34 PM

Is there anyone else here dealing with MTFHR? It's a genetic disorder to deal with folic acid and B6? Let me know, I need someone to talk to about it.

ndkallbreier · 10-06-2009, 07:14 PM

wow, i just looked it up. that sounds scary. i hope some one is around that can help you cope...

SezzySue · 10-06-2009, 09:01 PM

I am working on finding a dr that can help, but they are always weird to talk to. They tell me things and I have a billion questions late.

Either way I just found out our new insurance does not cover this medication and the other is $50 a month. SO yeah, not too excited right now

antjen · 10-06-2009, 11:05 PM

I do actually have one of the genetic mutations of the MTHFR. Which one do you have? There are some that are worse than others.

SezzySue · 10-07-2009, 12:22 AM

the dr never told me. if i look at my blood work could I tell? I have my medical records

antjen · 10-07-2009, 05:49 PM

Yeah, if the results are in there then it will tell you what type you are. I could tell you then if it's one of the better or worse ones to have.

antjen · 10-07-2009, 05:51 PM

I grew up around Victorville by the way. Actually in Lucerne Valley.

Lived in Victorville for a while though.

SezzySue · 10-07-2009, 07:46 PM

ah small world.

I am currently on Metanx for it, but will dig out my medical records later today

Hope. · 10-07-2009, 07:56 PM

Have you heard of Neevo? It's a new dietary medication. (www.neevoprenatal.com)

Néevo contains L-methylfolate, the active form of folate, which bypasses the MTHFR polymorphism and meets the distinct nutritional needs of patients with the TT C677T genotype.

We received pamplets at my job last week about it. I'm going to ask my DO(doctor) to put me on it before J gets back. I've never been tested but they suspect because I have VitaminB6, B12, and folic acid deficiencies. I also have really high protein levels and I have to take baby aspirin daily. It can't hurt anyways, it's just a "better" prenatal. It's recommended for patients who are over 35, previous high risk pregnancies, low birth weights, miscarriages....

SezzySue · 10-08-2009, 09:12 AM

i do have a special prenatal but thats the $50 a month perscription, and it gives me internal issues because of my IBS

10-06-2009, 03:34 PM	#1 (permalink)
SezzySue Photographer in Southern CA Join Date: Jul 2006 Location: Victorville, CA Posts: 18,371 Blog Entries: 4 Classifieds: (6) Activity: 51% Longevity: 56%	Anyone else with MTHFR Is there anyone else here dealing with MTFHR? It's a genetic disorder to deal with folic acid and B6? Let me know, I need someone to talk to about it. __________________ Dear God, I'm losing patience ~ TTC blog My Photography Blog

10-06-2009, 07:14 PM	#2 (permalink)
ndkallbreier Proud Army Wife Join Date: Jul 2009 Location: Newport New Va/Ft Eustis Posts: 410 Classifieds: (0) Activity: 39% Longevity: 5%	wow, i just looked it up. that sounds scary. i hope some one is around that can help you cope... __________________ *Nicole Dawn* if you see me on, ask if i have done my studying today *"I know I don't tell you as much as I should but I'm so happy your my wife and I love you more then you'll ever know" -- DH*

10-06-2009, 09:01 PM	#3 (permalink)
SezzySue Photographer in Southern CA Join Date: Jul 2006 Location: Victorville, CA Posts: 18,371 Blog Entries: 4 Classifieds: (6) Activity: 51% Longevity: 56%	I am working on finding a dr that can help, but they are always weird to talk to. They tell me things and I have a billion questions late. Either way I just found out our new insurance does not cover this medication and the other is $50 a month. SO yeah, not too excited right now __________________ Dear God, I'm losing patience ~ TTC blog My Photography Blog

10-06-2009, 11:05 PM	#4 (permalink)
antjen Junior Member Join Date: Jun 2008 Location: Ft. Carson, CO Posts: 168 Classifieds: (0) Activity: 14% Longevity: 23%	I do actually have one of the genetic mutations of the MTHFR. Which one do you have? There are some that are worse than others. __________________

10-07-2009, 12:22 AM	#5 (permalink)
SezzySue Photographer in Southern CA Join Date: Jul 2006 Location: Victorville, CA Posts: 18,371 Blog Entries: 4 Classifieds: (6) Activity: 51% Longevity: 56%	the dr never told me. if i look at my blood work could I tell? I have my medical records __________________ Dear God, I'm losing patience ~ TTC blog My Photography Blog

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10-07-2009, 05:49 PM	#6 (permalink)
antjen Junior Member Join Date: Jun 2008 Location: Ft. Carson, CO Posts: 168 Classifieds: (0) Activity: 14% Longevity: 23%	Yeah, if the results are in there then it will tell you what type you are. I could tell you then if it's one of the better or worse ones to have. __________________

10-07-2009, 05:51 PM	#7 (permalink)
antjen Junior Member Join Date: Jun 2008 Location: Ft. Carson, CO Posts: 168 Classifieds: (0) Activity: 14% Longevity: 23%	I grew up around Victorville by the way. Actually in Lucerne Valley. Lived in Victorville for a while though. __________________

10-07-2009, 07:46 PM	#8 (permalink)
SezzySue Photographer in Southern CA Join Date: Jul 2006 Location: Victorville, CA Posts: 18,371 Blog Entries: 4 Classifieds: (6) Activity: 51% Longevity: 56%	ah small world. I am currently on Metanx for it, but will dig out my medical records later today __________________ Dear God, I'm losing patience ~ TTC blog My Photography Blog

10-07-2009, 07:56 PM	#9 (permalink)
Hope. "If they give you ruled paper, write the other way." Join Date: Oct 2006 Location: Raleigh, NC Posts: 9,881 Blog Entries: 16 Classifieds: (0) Activity: 66% Longevity: 51%	Have you heard of Neevo? It's a new dietary medication. (www.neevoprenatal.com) Néevo contains L-methylfolate, the active form of folate, which bypasses the MTHFR polymorphism and meets the distinct nutritional needs of patients with the TT C677T genotype. We received pamplets at my job last week about it. I'm going to ask my DO(doctor) to put me on it before J gets back. I've never been tested but they suspect because I have VitaminB6, B12, and folic acid deficiencies. I also have really high protein levels and I have to take baby aspirin daily. It can't hurt anyways, it's just a "better" prenatal. It's recommended for patients who are over 35, previous high risk pregnancies, low birth weights, miscarriages.... __________________ I love my wifeys: ThatKid, Ashwee AND my SOS mistress...Brittany. Also, my school girl crush..Kaylin

10-08-2009, 09:12 AM	#10 (permalink)
SezzySue Photographer in Southern CA Join Date: Jul 2006 Location: Victorville, CA Posts: 18,371 Blog Entries: 4 Classifieds: (6) Activity: 51% Longevity: 56%	i do have a special prenatal but thats the $50 a month perscription, and it gives me internal issues because of my IBS __________________ Dear God, I'm losing patience ~ TTC blog My Photography Blog