getting WIC and/or SSI should not be this difficult! - Special Needs Children

wife-n-mommy · 11-05-2008, 07:30 PM

It should not be this difficult to get the things you need to care for a special needs child!! I just don't understand it!! Auriana was denied for SSI, so I sent in an appeal... her doctor told me that every baby gets denied the first time and sometimes several times!!

It's sad that there isn't something in place for special needs children to make it easier to get the things they need. PT, OT, speech, feeding tubes, feeding pumps, high calorie formula, sleep positioners, monitors..... all this costs money.
I spend 2 hours at the health department this morning trying to have Auriana's WIC transferred to our new county so I could get the vouchers to pic up her formula prescription. I left there with no vouchers. They told me that we don't qualify because my husband still has not found a job, and someone has to be working for you to qualify for WIC. How in the world am I supposed to get het $30 a can formula? I was told to come back at 8:15 in the morning tomorrow to talk to the head of department. It is hard enough to pack up all the things my child needs to get to an appointment, and then to sit there for 2 hours, only to be told to come back tomorrow.... it's ridiculous!! There has got to be an easier way. Anybody else with special needs child experience something similar?

KatReborn · 11-05-2008, 07:37 PM

I don't have any advice for you but I wanted to say

and I hope it all gets figured out so you can focus on taking care of the little one instead of having to worry about money

*~Robyn~* · 11-05-2008, 07:39 PM

Gah!! You're right, it shouldn't be this hard!!!! I'm so sorry for you!!!!

~~Donna~~ · 11-05-2008, 09:26 PM

Gabe was denied for SS disability 3 times before it was approved.

Ma*Becca · 11-05-2008, 09:30 PM

WTH I thought WIC was for families who don't have the funds?? I've never heard of not qualifying if your not working but who knows....Im sorry your having a difficult time, Im having to deal with the unemployment office and its taking 4 months to get any kind of reaction out of them...blah keep your head up it will work out, life always does

*Realized* · 11-05-2008, 09:35 PM

If Auri had medicaid she automatically gets WIC

wife-n-mommy · 11-05-2008, 10:16 PM

Originally Posted by Mommy2Bailey

If Auri had medicaid she automatically gets WIC

yeah, we never got approved for medicaid either... they denied that too

*Realized* · 11-06-2008, 05:35 PM

If neither of you are working she needs medicaid. Go back and keep applying until they give it to you. There is help out there but sometimes you have to bug the **** out of them.

wife-n-mommy · 11-06-2008, 05:42 PM

Originally Posted by Mommy2Bailey

If neither of you are working she needs medicaid. Go back and keep applying until they give it to you. There is help out there but sometimes you have to bug the **** out of them.

I have to wait until our Tricare TAMP runs out

*Realized* · 11-06-2008, 06:24 PM

Originally Posted by wife-n-mommy

I have to wait until our Tricare TAMP runs out

Oh yeah if you have tricare she isnt going to get it.

11-05-2008, 07:30 PM	#1 (permalink)
wife-n-mommy Senior Member Join Date: Jul 2007 Posts: 3,428 Blog Entries: 1 Classifieds: (0) Activity: 1% Longevity: 40%	getting WIC and/or SSI should not be this difficult! It should not be this difficult to get the things you need to care for a special needs child!! I just don't understand it!! Auriana was denied for SSI, so I sent in an appeal... her doctor told me that every baby gets denied the first time and sometimes several times!! It's sad that there isn't something in place for special needs children to make it easier to get the things they need. PT, OT, speech, feeding tubes, feeding pumps, high calorie formula, sleep positioners, monitors..... all this costs money. I spend 2 hours at the health department this morning trying to have Auriana's WIC transferred to our new county so I could get the vouchers to pic up her formula prescription. I left there with no vouchers. They told me that we don't qualify because my husband still has not found a job, and someone has to be working for you to qualify for WIC. How in the world am I supposed to get het $30 a can formula? I was told to come back at 8:15 in the morning tomorrow to talk to the head of department. It is hard enough to pack up all the things my child needs to get to an appointment, and then to sit there for 2 hours, only to be told to come back tomorrow.... it's ridiculous!! There has got to be an easier way. Anybody else with special needs child experience something similar? __________________ Katie- Mommy to Kylee 10-30-05 (loving big sister, Ms. independent, intelligent, princess) and Auriana 09-17-08 (miracle baby with down syndrome, heart defects, hearing impairment, digestive problems, tube fed since birth, but determined to succeed, strong, loving, happy) Ask me about Congenital Heart Defects... 1 in 100, it could be your child... Ask me about Down Syndrome... more common than you think... Wife to a Disabled Army Veteran... been there, done that, moving on

11-05-2008, 07:37 PM	#2 (permalink)
KatReborn MilitarySOS Jewel Join Date: Oct 2007 Location: Ft Bragg Posts: 5,909 Classifieds: (0) Activity: 0% Longevity: 35%	I don't have any advice for you but I wanted to say and I hope it all gets figured out so you can focus on taking care of the little one instead of having to worry about money __________________

11-05-2008, 07:39 PM	#3 (permalink)
~Robyn~ yes, I've given birth 6 times! Join Date: Aug 2008 Location: SoCal Posts: 9,205 Blog Entries: 2 Classifieds: (0) Activity: 35% Longevity: 21%	Gah!! You're right, it shouldn't be this hard!!!! I'm so sorry for you!!!! __________________ Kimberly Lynn + = + = Results:

11-05-2008, 09:30 PM	#5 (permalink)
Ma*Becca Yours, Mine and Ours Join Date: Jan 2008 Location: San Diego Posts: 6,690 Classifieds: (0) Activity: 24% Longevity: 30%	WTH I thought WIC was for families who don't have the funds?? I've never heard of not qualifying if your not working but who knows....Im sorry your having a difficult time, Im having to deal with the unemployment office and its taking 4 months to get any kind of reaction out of them...blah keep your head up it will work out, life always does __________________ Loving my big blended family

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11-05-2008, 09:26 PM	#4 (permalink)
~~Donna~~ Banned Join Date: Jan 2004 Location: New Orleans Posts: 16,885 Blog Entries: 1 Classifieds: (0) Activity: 0% Longevity: 99%	Gabe was denied for SS disability 3 times before it was approved.

11-05-2008, 09:35 PM	#6 (permalink)
Realized Account Closed Join Date: Jun 2006 Posts: 25,099 Blog Entries: 6 Classifieds: (0) Activity: 5% Longevity: 57%	If Auri had medicaid she automatically gets WIC

11-06-2008, 05:35 PM	#8 (permalink)
Realized Account Closed Join Date: Jun 2006 Posts: 25,099 Blog Entries: 6 Classifieds: (0) Activity: 5% Longevity: 57%	If neither of you are working she needs medicaid. Go back and keep applying until they give it to you. There is help out there but sometimes you have to bug the **** out of them.