Baby born with cleft palate - Special Needs Children

Sid's Girl · 08-09-2008, 02:35 PM

My friend's baby girl was born this week with a cleft palate. I'm not sure the extent as I haven't seen her and my friend is still coming to terms with everything that's going on so I don't want to ask a lot of invasive questions. She did say they're doing chorosomal testing, something about a chromosome 22 problem. I looked on the internet a bit, but was wondering if anyone here might have any experience with it. I know a few kids who have had cleft palates and the surgery was successful, but never heard about this chromosome isssue.

shorty60088 · 08-09-2008, 02:42 PM

Originally Posted by Sid's Girl

My friend's baby girl was born this week with a cleft palate. I'm not sure the extent as I haven't seen her and my friend is still coming to terms with everything that's going on so I don't want to ask a lot of invasive questions. She did say they're doing chorosomal testing, something about a chromosome 22 problem. I looked on the internet a bit, but was wondering if anyone here might have any experience with it. I know a few kids who have had cleft palates and the surgery was successful, but never heard about this chromosome isssue.

my oldest was born with cleft lip and palate. All of his surgeries were very successful and will start more in December. I haven't heard about the Chromosome issue. Hope your friends baby goes thru the surgeries well.

amazinggrace · 08-09-2008, 02:46 PM

http://ghr.nlm.nih.gov/chromosome=22

fridayheather · 08-09-2008, 07:19 PM

DH and I have good friends (the husband is in DH's unit) who have a daughter born with a severe cleft palate. They knew she had a cleft palate from the U/S and started preparing for it before she was even born. She's had a few surgeries and now you can hardly tell she had one at all.

So best wishes to your friends, hopefully they are able to get a good surgeon and medical care for their daughter.

SemperFiWife · 08-09-2008, 07:31 PM

My son has a submucus cleft palate. His isn't that bad, like you can't tell it when you look at him. His is boarder line. If his speach isn't effected he won't have to have surgry but the speach therapist already said that she thinks the reason he isn't talking is due to his palate.

Sid's Girl · 08-09-2008, 09:02 PM

Saw my friend tonight and got an update. She has no cleft lip, from the outside appearance, she looks fine. But she has a cleft palate, just a hole opening into the nasal cavity. They said surgery at 9 months, feed her upright so she doesn't drain up into her nose. My friend found the right bottle and nipple to help with the feedings and the doctor told her she could even begin solid foods (baby jars) on schedule, they just have to learn to adapt to a different style of feeding. So it sounds like it's the best of the situation. We'll hear results of the chromosomal testing this week. They told her it was a law that the testing be done when those defects become known. Not sure if that's true, or if they were just trying to make her feel better about their reasoning in doing it. They gave the impresison there was nothing genetic to worry about. Her husband is part Cherokee and apparently this is prevalent in the Cherokee culture. Come to find out the Dad has some issue with extra bones in his jaw, so in all liklihood it was due to the prevalence in his heritage.

Thank you for all your responses, she was really feeling lost and I didn't know what to say or how to encourage her.

08-09-2008, 02:35 PM	#1 (permalink)
Sid's Girl Senior Member Join Date: Jul 2008 Location: NJ Posts: 3,435 Classifieds: (0) Activity: 23% Longevity: 23%	Baby born with cleft palate My friend's baby girl was born this week with a cleft palate. I'm not sure the extent as I haven't seen her and my friend is still coming to terms with everything that's going on so I don't want to ask a lot of invasive questions. She did say they're doing chorosomal testing, something about a chromosome 22 problem. I looked on the internet a bit, but was wondering if anyone here might have any experience with it. I know a few kids who have had cleft palates and the surgery was successful, but never heard about this chromosome isssue. __________________

08-09-2008, 07:19 PM	#4 (permalink)
fridayheather Senior Member Join Date: May 2006 Location: Jacksonville Florida Posts: 5,210 Classifieds: (0) Activity: 1% Longevity: 59%	DH and I have good friends (the husband is in DH's unit) who have a daughter born with a severe cleft palate. They knew she had a cleft palate from the U/S and started preparing for it before she was even born. She's had a few surgeries and now you can hardly tell she had one at all. So best wishes to your friends, hopefully they are able to get a good surgeon and medical care for their daughter. __________________

08-09-2008, 09:02 PM	#6 (permalink)
Sid's Girl Senior Member Join Date: Jul 2008 Location: NJ Posts: 3,435 Classifieds: (0) Activity: 23% Longevity: 23%	Saw my friend tonight and got an update. She has no cleft lip, from the outside appearance, she looks fine. But she has a cleft palate, just a hole opening into the nasal cavity. They said surgery at 9 months, feed her upright so she doesn't drain up into her nose. My friend found the right bottle and nipple to help with the feedings and the doctor told her she could even begin solid foods (baby jars) on schedule, they just have to learn to adapt to a different style of feeding. So it sounds like it's the best of the situation. We'll hear results of the chromosomal testing this week. They told her it was a law that the testing be done when those defects become known. Not sure if that's true, or if they were just trying to make her feel better about their reasoning in doing it. They gave the impresison there was nothing genetic to worry about. Her husband is part Cherokee and apparently this is prevalent in the Cherokee culture. Come to find out the Dad has some issue with extra bones in his jaw, so in all liklihood it was due to the prevalence in his heritage. Thank you for all your responses, she was really feeling lost and I didn't know what to say or how to encourage her. __________________

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08-09-2008, 02:46 PM	#3 (permalink)
amazinggrace Senior Member Join Date: Apr 2008 Posts: 10,203 Classifieds: (6) Activity: 45% Longevity: 27%	http://ghr.nlm.nih.gov/chromosome=22

08-09-2008, 07:31 PM	#5 (permalink)
SemperFiWife Doodle Bob Join Date: May 2008 Location: Camp Lejeune, NC Posts: 14,607 Classifieds: (0) Activity: 50% Longevity: 25%	My son has a submucus cleft palate. His isn't that bad, like you can't tell it when you look at him. His is boarder line. If his speach isn't effected he won't have to have surgry but the speach therapist already said that she thinks the reason he isn't talking is due to his palate.