down's syndrome and heart defect... - Special Needs Children

wife-n-mommy · 06-02-2008, 12:37 PM

I was told today that the baby I'm pregnant with has AV Canal (some kind of heart defect) and has 6 out of 7 known visible fetal marker signs for Down's Syndrome. We are heart broken and never thought it would happen to us. I'm still trying to process everything. I just wanted to see if there are any of you out there who have dealt with this type of thing.
They want me to have an amnio done to rule out Trisomy something... they said that if the baby had that, then they would not want to worry about doing the heart surgery on her or bother giving me a C section when the baby in that case would not likely live very long. For that reason, I will not be having the test done. I would much rather endure anything necessary to TRY to save my baby than to know that there was not even any attempt made.
I believe that all possible should be done to save a baby and what happens is left up to God.
Anyway, thanks for reading and if there is anyone out there dealing with something similar please contact me. I'd really like to talk to you. Thank you.

Rain. · 06-02-2008, 12:40 PM

I've never dealt with it but wanted to offer you lots of

*Kate* · 06-02-2008, 12:41 PM

Oh my goodness, I am so sorry. I don't have any experience with any of that but if you need anything or just someone to talk to, please feel free to PM me.

*Realized* · 06-02-2008, 12:42 PM

I am so so sorry.

~~Bex~~ · 06-02-2008, 12:43 PM

downs kids are amazing, wonderful children. i've worked with several and had a very good friend as a child with downs.

we're all here for you!!

SnarphBlat · 06-02-2008, 12:43 PM

You have our support, i'll be praying for your baby.

rosebud* · 06-02-2008, 12:43 PM

i have no experience with any of that.

i just want to wish you good vibes and lots of prayers.

Tiffany · 06-02-2008, 12:45 PM

I would have made the same decision as you. I would want everything thing done to save my child. I have worked with several children that have disabilities including downs. They are some of the most beautiful wonderful children.

*~*Cori*~* · 06-02-2008, 12:50 PM

Oh Sweetie you are in my thoughts and prayers Darling.

USNIwife · 06-02-2008, 12:51 PM

I cried for you,

,

. Anything I can do help. Anything. PM me.

ya

06-02-2008, 12:37 PM	#1 (permalink)
wife-n-mommy Senior Member Join Date: Jul 2007 Posts: 3,428 Blog Entries: 1 Classifieds: (0) Activity: 1% Longevity: 40%	down's syndrome and heart defect... I was told today that the baby I'm pregnant with has AV Canal (some kind of heart defect) and has 6 out of 7 known visible fetal marker signs for Down's Syndrome. We are heart broken and never thought it would happen to us. I'm still trying to process everything. I just wanted to see if there are any of you out there who have dealt with this type of thing. They want me to have an amnio done to rule out Trisomy something... they said that if the baby had that, then they would not want to worry about doing the heart surgery on her or bother giving me a C section when the baby in that case would not likely live very long. For that reason, I will not be having the test done. I would much rather endure anything necessary to TRY to save my baby than to know that there was not even any attempt made. I believe that all possible should be done to save a baby and what happens is left up to God. Anyway, thanks for reading and if there is anyone out there dealing with something similar please contact me. I'd really like to talk to you. Thank you. __________________ Katie- Mommy to Kylee 10-30-05 (loving big sister, Ms. independent, intelligent, princess) and Auriana 09-17-08 (miracle baby with down syndrome, heart defects, hearing impairment, digestive problems, tube fed since birth, but determined to succeed, strong, loving, happy) Ask me about Congenital Heart Defects... 1 in 100, it could be your child... Ask me about Down Syndrome... more common than you think... Wife to a Disabled Army Veteran... been there, done that, moving on

06-02-2008, 12:40 PM	#2 (permalink)
Rain. MilitarySOS Jewel Join Date: Oct 2007 Posts: 19,156 Classifieds: (0) Activity: 36% Longevity: 35%	I've never dealt with it but wanted to offer you lots of __________________

06-02-2008, 12:41 PM	#3 (permalink)
Kate Lounging with ocean breezes and palm trees Join Date: Mar 2007 Location: Hawaii Posts: 13,091 Classifieds: (1) Activity: 23% Longevity: 45%	Oh my goodness, I am so sorry. I don't have any experience with any of that but if you need anything or just someone to talk to, please feel free to PM me. __________________ Needs work.

06-02-2008, 12:43 PM	#6 (permalink)
SnarphBlat Senior Member Join Date: Nov 2007 Location: NY Posts: 11,441 Blog Entries: 15 Classifieds: (0) Activity: 74% Longevity: 33%	You have our support, i'll be praying for your baby. __________________ Praying my Marine back home.

06-02-2008, 12:43 PM	#7 (permalink)
rosebud* rosebud*<3 Brittany Jo && <3 thekels9 Join Date: Nov 2005 Location: [wherever his heart is] Posts: 32,651 Blog Entries: 2 Classifieds: (0) Activity: 49% Longevity: 67%	i have no experience with any of that. i just want to wish you good vibes and lots of prayers. __________________

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06-02-2008, 12:42 PM	#4 (permalink)
Realized Account Closed Join Date: Jun 2006 Posts: 25,099 Blog Entries: 6 Classifieds: (0) Activity: 5% Longevity: 57%	I am so so sorry.

06-02-2008, 12:43 PM	#5 (permalink)
~~Bex~~ Banned Join Date: Jan 2004 Location: san diego, ca Posts: 30,189 Classifieds: (0) Activity: 0% Longevity: 99%	downs kids are amazing, wonderful children. i've worked with several and had a very good friend as a child with downs. we're all here for you!!

06-02-2008, 12:45 PM	#8 (permalink)
Tiffany New MOMMY and LOVING it !!!! Join Date: Dec 2005 Location: Georgia Posts: 5,374 Classifieds: (0) Activity: 0% Longevity: 67%	I would have made the same decision as you. I would want everything thing done to save my child. I have worked with several children that have disabilities including downs. They are some of the most beautiful wonderful children. __________________ Pregnant with baby #2 !!!

06-02-2008, 12:50 PM	#9 (permalink)
~Cori~ Too Blessed To Be Stressed Join Date: Jan 2004 Location: Backwoods Of Florida Posts: 20,577 Classifieds: (0) Activity: 7% Longevity: 98%	Oh Sweetie you are in my thoughts and prayers Darling. __________________