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Thread: Jamie

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    Jamie

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    How is your little man doing? Any new progress with medical?
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    I've been curious too.


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    Sorry I never read in here LOL.

    Jacob will be 19 months on the 25th. He has no firm DX yet, he was approved for AZEIP and he now has a plan in effect. He will see his OT every other week and his ST every other week so he is seen at least once a week by one of the two. So far he does not have an ST assigned to him. He see's his OT on the 11th for his first real session. His case worker is staying on as his OT because they have a good bond.

    She is hoping that once he picks up on the signs he MIGHT stop the banging, the extreme tantrums, etc. If he has not improved on his autism red flags (the above plus, the poor eye contact, desensitization to pain, etc) she will then refer him to a specialist to look more into it.

    He has been banging more the past week but I think it is the change in routine. He just about put his head through the window the other day it scared my husband and I. (there was a screen on the inside so it blunted some of the force) He has his good days and his not so good days. He threw a crazy 40 min long tantrum just last night then walked all through the house came back and was fine. I don't know what set him off or what calmed him down.

    I just take it one day at a time and accept that this just is how Jacob is. I just want to be able to communicate with him in a way that causes less stress for him.
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    That's great about the OT and ST. ST has changed our lives, literally... Riley went in there with 5-7 words and 4 months later he is pushing out over 100 now. It's funny because it wasn't so much what the speech therapist taught Riley, but more what he taught US (about speaking for him, taking away access to his toys, all that crap).

    Does he like movies/tv? I know that we try to limit Riley's, but there is this show called "Signing Times" and it's basically about a woman and her daughter and they sign throughout the entire show, it's REALLY cool! That might be worth checking into. We have a burned copy of some episodies, but I will see if Ryan can burn a copy of our copy and I can send them to you if you are interested.

    Have you looked into weighted blankets and pressure therapy? We do that with Riley and it REALLY helps with all of his meltdowns! My stepmom swears by it for my brother too. I would definitely look into that too when you get a chance!

    Anyways, I hope I don't sound like a know-it-all, just wanted to pass on some things that have helped us. I ABSOLUTELY know how you feel, the emotional roller coaster of wondering and worrying. Your attitude about everything is fantastic though! Just remember, if you EVER need someone to vent to or talk to that is familiar with everything, PLEASE don't hesitate to give me a shout!
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    Quote Originally Posted by Green~Mammy View Post
    Sorry I never read in here LOL.

    Jacob will be 19 months on the 25th. He has no firm DX yet, he was approved for AZEIP and he now has a plan in effect. He will see his OT every other week and his ST every other week so he is seen at least once a week by one of the two. So far he does not have an ST assigned to him. He see's his OT on the 11th for his first real session. His case worker is staying on as his OT because they have a good bond.

    She is hoping that once he picks up on the signs he MIGHT stop the banging, the extreme tantrums, etc. If he has not improved on his autism red flags (the above plus, the poor eye contact, desensitization to pain, etc) she will then refer him to a specialist to look more into it.

    He has been banging more the past week but I think it is the change in routine. He just about put his head through the window the other day it scared my husband and I. (there was a screen on the inside so it blunted some of the force) He has his good days and his not so good days. He threw a crazy 40 min long tantrum just last night then walked all through the house came back and was fine. I don't know what set him off or what calmed him down.

    I just take it one day at a time and accept that this just is how Jacob is. I just want to be able to communicate with him in a way that causes less stress for him.

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    You know I understand and I'm here if you ever need to talk. Thanks for starting this thread Trey.


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    Quote Originally Posted by Rileysmom View Post
    That's great about the OT and ST. ST has changed our lives, literally... Riley went in there with 5-7 words and 4 months later he is pushing out over 100 now. It's funny because it wasn't so much what the speech therapist taught Riley, but more what he taught US (about speaking for him, taking away access to his toys, all that crap).

    Does he like movies/tv? I know that we try to limit Riley's, but there is this show called "Signing Times" and it's basically about a woman and her daughter and they sign throughout the entire show, it's REALLY cool! That might be worth checking into. We have a burned copy of some episodies, but I will see if Ryan can burn a copy of our copy and I can send them to you if you are interested.

    Have you looked into weighted blankets and pressure therapy? We do that with Riley and it REALLY helps with all of his meltdowns! My stepmom swears by it for my brother too. I would definitely look into that too when you get a chance!

    Anyways, I hope I don't sound like a know-it-all, just wanted to pass on some things that have helped us. I ABSOLUTELY know how you feel, the emotional roller coaster of wondering and worrying. Your attitude about everything is fantastic though! Just remember, if you EVER need someone to vent to or talk to that is familiar with everything, PLEASE don't hesitate to give me a shout!
    Jacob is not really into the TV he likes animals when he sees them on it so I sometimes put animal planet on for him. I am working on please, open, & drink as far as signs go for now. I know I need to work harder on it to "force" him to sign please, etc. It's hard though on him, me, and everyone around us. It's amazing how much he hates his comfort zone to be pushed even a teeny tiny bit.

    I think the weighted blanket or vest might help him. He really likes the weight of his shoes on his feet. He stomps around in his sneakers and you can see he just likes the way it feels. (the heaviness?)

    I can not say how much I appreciate you thinking about us and taking the time to ask. I don't talk about it a lot outside of my family because I hate the "well my child..." when they have "normal" kids. Then is makes me feel awful for thinking "well my kids not normal." I feel like it is important for me to understand that THIS is normal for Jacob and we can help him so that we can understand him but ultimately he is who he is and that is a gift no matter what.

    I don't think you or Jamie are know it alls and I really like having you two around to talk about this with. Does Riley sign as well as talk?
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